Since 2011 these have been the focus of the charity’s year. Usually taking place in April in the Birmingham area, these events bring together families from all across the UK. The format includes a panel of medical and special education professionals to talk about the latest developments, research and treatment including importantly the opportunity for families to ask any specific questions they have and to talk informally to the experts at various points throughout the day. We also provide stimulating professionally led activities for children and young people attending. The event is growing year on year and there are possible plans to hold other events in different parts of the country at a future date.