NSA is a registered charity – no. 1140671 – formed in 2011 and overseen by a Board of up to 10 Trustees with a part time Charity Manager. But it is an organisation which belongs to its members and draws its strength from them. Every one of our members has direct experience of Noonan Syndrome either because they have the Syndrome, they are from or associated with families affected by it or are medical or other professionals working with Noonan families.

We are also supported by a Medical Advisory Group consisting of leading names in the field of genetics, Noonan Syndrome and its symptoms.