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Noonan Syndrome Association
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  • ABOUT US
    • HISTORY OF THE CHARITY
    • BECOME A MEMBER
    • TRUSTEES
    • NEWSLETTERS
    • EVENTS
  • CONTACT US
  • NOONAN SYNDROME
    • THE SYNDROME
    • FAMILY STORIES
    • PUBLICATIONS
  • OUR WORK
    • SUPPORTING FAMILIES
    • FUNDING RESEARCH
    • RAISING AWARENESS
  • OUR EXPERTS
    • MEDICAL ADVISORY GROUP
  • SUPPORT US
    • MAKE A DONATION
    • FUNDRAISE
    • LEAVE A LEGACY

Monthly Archives: February 2018

FAMILIES FOR FAMILIES DAY APRIL 21st 2018
13 Feb 2018

FAMILIES FOR FAMILIES DAY APRIL 21st 2018

by Katie Ballard | posted in: News | 0

Our next Families for Families Day is on Saturday 21st April at the Whitemoor Lakes Centre near Lichfield in Staffordshire and this year you can also make a weekend of it – go to the Events section which you’ll find … Continued

Noonan Syndrome Awareness Month
6 Feb 2018

Noonan Syndrome Awareness Month

by Katie Ballard | posted in: News | 0

Our friends in the USA – the Noonan Syndrome Foundation – have made February Noonan Syndrome Awareness Month. Let’s do our bit:

Recent Posts

  • Noonan Families Day and Activities Weekend
  • Families Day Recordings
  • Report on the latest international meeting on Ras/MAPK Pathway Disorders
  • The 30 Year Follow Up Study
  • Now Hear This! The Question & Answer Sessions from the Families Day

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    Registered charity No. 1140671

    Support for individuals and families affected by Noonan Syndrome in the UK

    Medical Adviser: Professor Michael A Patton FRCP

    Correspondence Address: 12 Talbot Close, Shifnal, Shropshire TF11 8SG

    Principal Address: Cross Chambers, 9 High Street, Newtown, Powys, SY16 2NY

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