Each year a key international conference takes place where leading figures from the medical world meet to look at the latest developments in research and treatment on the disorders along the Ras/MAPK Pathway. Amongst those taking part were Professor Bronwen … Continued
And the latest in our recordings of sessions from the 2018 Families Day concerns the invaluable work which is being undertaken by Professor Patton and his son Dr Alistair Patton. Noonans 2018 – Session 8 – The 30 Year Study … Continued
Yes, you can now listen to both sessions of questions from families and answers from our panel of medical experts as it happened – here’s part 1: Noonans 2018 – Session 6 – Q and A 1 and the session … Continued
The next recordings are of Dr Emma Burkitt Wright’s presentation on Pregnancy & Noonan Syndrome (starting with Ian Legg thanking Andrea and Brian for their presentations – have you listened to them yet?), followed by Dr Juan Kaski talking about … Continued
We are putting recordings of some of the sessions and presentations from the 2018 Families for Families Day here, and the first up are Two Family Stories – Andrea Reid-Kelly and Brian Carlton, both of whom have Noonan Syndrome, tell their own … Continued