Rare Disease Tea Party 2019

posted in: Events | 0

NSA Trusee Andrea Reid-Kelly reports on her visit to the Rare Diseases Afternoon Tea Party in London on Wednesday 10th July. I had a great time! The event was organised by the British Paediatric Surveillance Unit (BPSU) to raise awareness … Continued

Take to the Skys!

posted in: Fundraising | 0

One of our brave members Shaneen took to the sky’s in June to raise money for our organization. Shaneen raised just over £200 completing a once in a life time experience skydiving in Beccles, Suffolk. Shaneen’s husband and son Jack both … Continued