Sharon’s Story
Growing up with a brother with Noonans Sharon Allsopp, our deputy chair was four years old when her brother Richard was born. He was the third to be born to their parents and having had two healthy girls, they assumed … Continued
Richard’s Story
Growing up with Noonans has affected Richard Allsopp’s education, social life and achievements. But he’s gone through mainstream school, completed a degree, enjoyed a varied career and lived on his own for many years. Here’s his story. Richard is the … Continued
Career guidance for SEND
Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby Education and the Careers and Enterprise Company & Disability Rights … Continued
Running for Mark
Matthew has set himself a personal challenge of running the London Marathon to honour his brother and to provide an on-going legacy for Mark through the Noonan Syndrome Association. He needs your support. I’m running the London Marathon in April … Continued
Help us push the boundaries of research
We have a successful history with research – but we need to do more Professor Mike Patton, Medical Adviser for the Noonan Syndrome Association, has been involved with conducting genetic research into the syndrome since 1986. In the early days … Continued
Help the charity support others by giving monthly
When you set up a regular donation you become part of the Noonan Syndrome Associations long term aims. To enable the charity to support its members, increase awareness of the syndrome and fund vital research. To date our modest charity … Continued
Living the dream working the rails
Working on the railways is the dream for many children growing up. For Will Parham, that was the case. He now lives his dream as a volunteer at Truro station. Will has Noonan Syndrome, a genetic disorder that prevents normal … Continued