My Journey With Noonan Syndrome

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I became involved with Noonan syndrome almost by accident but now I have completed almost 30 years of research into the condition and helped to discover the main gene responsible for Noonan syndrome. The first meeting of families with Noonan … Continued

Brian Carlton

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Brian (at 7 and now)Adam (at birth and 4 weeks) Brian Carlton and his wife Norma didn’t know anything about Noonan Syndrome until their third child Joanne came along. When she was found to have heart problems, just like her … Continued

BSPED conference in Cardiff

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Two of our trustees, Andrea Reid – Kelly and Ian Legg are in Cardiff this week attending the BSPED conference . This is the British Society of Paediatric Endocrinology and Diabetes – Andrea and Ian are there to raise the … Continued

Sharon’s Story

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Growing up with a brother with Noonans Sharon Allsopp, our deputy chair was four years old when her brother Richard was born. He was the third to be born to their parents and having had two healthy girls, they assumed … Continued

Richard’s Story

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Growing up with Noonans has affected Richard Allsopp’s education, social life and achievements. But he’s gone through mainstream school, completed a degree, enjoyed a varied career and lived on his own for many years. Here’s his story. Richard is the … Continued

Career guidance for SEND

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Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby Education and the Careers and Enterprise Company & Disability Rights … Continued

Running for Mark

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Matthew has set himself a personal challenge of running the London Marathon to honour his brother and to provide an on-going legacy for Mark through the Noonan Syndrome Association. He needs your support. I’m running the London Marathon in April … Continued

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