For Mark Legg

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For Mark Legg: A truly inspirational and brave young man with Noonan’s syndrome who last week lost his fight with increasing complicated health issues. Please help us to now raise money in his honour so the charity for which his … Continued

What is gene therapy?

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Around 80% of rare diseases have a genetic cause. Many of these diseases have no good treatment options, but gene therapy might help. So what is gene therapy, and how does it work? Raremark have produced an article we think … Continued

“Miles for Noonan Smiles Success”

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To celebrate Dr Noonan reaching her 90th on 28th October families all over the country took part in individually organised small fundraising walks. Alison Good and over 20 of her fellow walkers completed 28 miles in the Southampton area in … Continued

Fundraising—a BIG thank you

posted in: Fundraising | 0

It’s been a great year for fundraising by members, their families and friends plus we’ve nearly met our 2018 target for regular giving of £1,000 per month including GiftAid – in fact we’re only £40 per month short! Would anyone … Continued

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