Essex Bike Ride

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Paul Rider led a team riding for Noonan Syndrome Association on Sunday 8th September in the Foulness Bike Ride in Essex. The first picture shows Paul on the right and Mark in the middle and Louise on the left, before … Continued

7th September Fundraiser

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Some great pictures of a lovely fundraiser on the 7th September organised by Mrs Swift, mother to one of our trustees 🙂 The cake sale at Chastleton House National Trust property in Oxfordshire raised just over £600! What a fabulous … Continued

Rare Disease Tea Party 2019

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NSA Trusee Andrea Reid-Kelly reports on her visit to the Rare Diseases Afternoon Tea Party in London on Wednesday 10th July. I had a great time! The event was organised by the British Paediatric Surveillance Unit (BPSU) to raise awareness … Continued

Take to the Skys!

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One of our brave members Shaneen took to the sky’s in June to raise money for our organization. Shaneen raised just over £200 completing a once in a life time experience skydiving in Beccles, Suffolk. Shaneen’s husband and son Jack both … Continued

Check out Benji!

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Check out Benji, with his mum Stephanie at Coleby primary school in Lincolnshire who supported a fabulous little fundraiser last week. Well done guys – and thank you

For Mark Legg

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For Mark Legg: A truly inspirational and brave young man with Noonan’s syndrome who last week lost his fight with increasing complicated health issues. Please help us to now raise money in his honour so the charity for which his … Continued

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