“Miles for Noonan Smiles Success”

posted in: Fundraising | 0

To celebrate Dr Noonan reaching her 90th on 28th October families all over the country took part in individually organised small fundraising walks. Alison Good and over 20 of her fellow walkers completed 28 miles in the Southampton area in … Continued

Fundraising—a BIG thank you

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It’s been a great year for fundraising by members, their families and friends plus we’ve nearly met our 2018 target for regular giving of £1,000 per month including GiftAid – in fact we’re only £40 per month short! Would anyone … Continued

Let’s push Genida forward

posted in: Research | 0

We have had a message from GenIDA asking for our help in getting the number of participants in the GenIDA database up from 60 to over 100. This is perfectly possible if just a few more of you could complete … Continued

The good work of ERN-ITHACA

posted in: Research | 0

Members of our medical advisory group work in collaboration with The European Reference Network on Congenital Malformations and Rare Intellectual Disability – thankfully known as ERN-ITHACA to progress research. Just for your information the organisation has been supporting research in … Continued

Annual Families Day

posted in: News | 0

We are delighted to announce the date of our 2016  families for families day at the Hilton Birmingham Metropole Hotel at the Birmingham NEC. On Saturday 23rd April we will be introducing our best ever panel of  medical experts to … Continued

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