BSPED conference in Cardiff

posted in: News | 0

Two of our trustees, Andrea Reid – Kelly and Ian Legg are in Cardiff this week attending the BSPED conference .

This is the British Society of Paediatric Endocrinology and Diabetes – Andrea and Ian are there to raise the profile of Noonan Syndrome and the growth issues associated with it and to explain what the charity does to help families affected by Noonan Syndrome.

Their conversations have confirmed that there are significant differences across the country in the way that decisions are taken regarding growth hormone and a lot of work is still needed to understand why some Noonan patients are more affected by growth issues than others.

NSA intends to continue these important conversations and to spend time on this subject at the Families medical day on 4 April 2020.