Let’s push Genida forward

posted in: Research | 0

We have had a message from GenIDA asking for our help in getting the number of participants in the GenIDA database up from 60 to over 100. This is perfectly possible if just a few more of you could complete … Continued

The good work of ERN-ITHACA

posted in: Research | 0

Members of our medical advisory group work in collaboration with The European Reference Network on Congenital Malformations and Rare Intellectual Disability – thankfully known as ERN-ITHACA to progress research. Just for your information the organisation has been supporting research in … Continued