My son’s eight and we’ve identified everything he has an issue with medically. I was wondering if any other medical problems can arise with Noonan’s later on in childhood or into adulthood, other than maybe delayed puberty.
A lot of these syndromes are described in childhood and we get most of the information in childhood but what we want to do is follow it through so we have answers to that question. As a general rule most of the things that we predict in childhood are carried through but we don’t see other things developing. But in some cases, lymphoedema has developed in adult life, which we didn’t predict, so I think we need to do further studies to answer that in the longer term.
Question asked and answered at our family’s day 2018