I understand that hydrops is quite common in Noonan’s children. Our daughter’s 5 and had hydrops when I was pregnant. I just wondered if there’s a high chance of those that did suffer with hydrops of developing lymphoedema problems later in life?
We’ve only seen about 15 people with Noonan’s and lymphoedema and some of those had hydrops but not all – and then I’ve seen many children with hydrops who haven’t developed lymphoedema so there’s no clear correlation at the moment.
Question asked and answered at our family’s day 2016