I have a 13-year-old daughter with quite mild Noonan Syndrome, but I am concerned she may have some learning difficulties and anxiety issues. A speech therapist has assessed her and is happy she is okay, but I am not so sure. Is this a trait of Noonan Syndrome?
You should ask your GP for a referral to a clinical psychologist so your daughter can get an appropriate assessment. If your daughter is already under the care of a specialist, such as an endocrinologist or a paediatrician, it might be faster and more effective to ask them to refer her instead. If not, then the GP or even your daughter’s school should support in getting her properly assessed.
Learning difficulties can be an issue for many Noonan Syndrome youngsters, so this is something to discuss with your GP, daughter’s school and/or specialist if you have one. Anxiety can stem from a range of issues, so whilst this might relate to NS issues, it isn’t a clinical feature of the syndrome itself. The best thing would be to get your daughter seen by a specialist who can look at her full medical history and make a considered assessment.