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Noonan Syndrome Association

Supporting People

with Noonan Syndrome

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Education FAQ

Is my child entitled to emotional support at school?
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Is my child entitled to emotional support at school?

by admin | | 0

My child gets very stressed about any challenges that the teacher sets and I worry they aren’t receiving the right emotional support at school. Can I do anything?  One of the areas in the Code of Practice is social, emotional … Continued

Do I need an EHCP for my child’s needs to be met?
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Do I need an EHCP for my child’s needs to be met?

by admin | | 0

What can I do about my child in education who is borderline but not statemented for special needs? Just because a child didn’t have a statement of educational needs or an Education & Health Care Needs assessment didn’t mean that … Continued

Is it a good idea to pay for a second opinion when completing an EHCP?
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Is it a good idea to pay for a second opinion when completing an EHCP?

by admin | | 0

My son has got Noonan Syndrome but his situation is complex. I am getting him ready to go to a special school for reception in September but I do not know what is or what isn’t the right funding for … Continued

Is funding transferable funding between local authorities?
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Is funding transferable funding between local authorities?

by admin | | 0

Our daughter has an EHCP that has just gone through the review process and she has received a good amount of funding. We live in London in one borough and may be moving to another borough before school starts in … Continued

Can I complete an EHCP without all the reports?
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Can I complete an EHCP without all the reports?

by admin | | 0

My daughter is in the process of going through an education health care needs assessment but her reports for health including OT are 5 years old. She has been re referred for therapies but the new reports will not be … Continued

Recent Posts

  • Channel 4 showing Mark’s programme again this Friday
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  • VINCI UK Foundation awards £15,000 to Noonan Syndrome Association to support the community of families, and especially children and young people, affected by Noonan Syndrome across the UK.
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    Registered charity No. 1140671

    Support for individuals and families affected by Noonan Syndrome in the UK

    Medical Adviser: Professor Michael A Patton FRCP

    Correspondence Address: 12 Talbot Close, Shifnal, Shropshire TF11 8SG

    Principal Address: Cross Chambers, 9 High Street, Newtown, Powys, SY16 2NY

    Contact Us

    Registered charity No. 1140671

    Medical Adviser: Professor Michael A Patton FRCP

    Email: [email protected]

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