Our baby was born with extreme hydrops (increased fluid around the pregnancy). The obstetrician basically did a quick “Google” search as he had no guidelines for pregnancies for Noonan Syndrome and didn’t find anything that could go wrong but we … Continued
Is watching and waiting the best treatment for a mild Lymphoedema or is it worth using compression garments early on to prevent it getting worse? Lymphatic problems are very common – hydrops, swelling of the feet at birth, web neck, … Continued
I understand that hydrops is quite common in Noonan’s children. Our daughter’s 5 and had hydrops when I was pregnant. I just wondered if there’s a high chance of those that did suffer with hydrops of developing lymphoedema problems later … Continued
I understand that hydrops is quite common in Noonan’s children. Our daughter’s 5 and had hydrops when I was pregnant. I just wondered if there’s a high chance of those that did suffer with hydrops of developing lymphoedema problems later … Continued
Our daughter suffers from spontaneous chylothorax as well as pulmonary stenosis and ASD. She’s had open heart surgery which was very successful. I was wondering if in the medical world is there any more research being done on whether there … Continued
