Noonan Families Day and Activities Weekend

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It’s less than 6 months until the next Families Activities Weekend on 12th to 14th April 2019 with the Families Day itself on Saturday 13th April. Although the full programme for the Families Day won’t be published for a few months yet, we can say that for 2019, as well as our general Question & Answer Session, topics will also include Learning and Behaviour, Growing Up and Growing Older with Noonan Syndrome and Gene Differentiation in NS.

As well as the serious side, there will be organised fun activities, both inside and outdoor on Saturday and on Sunday morning as well as entertainment provided on Saturday evening.

Like this year, you will be able to stay over on Friday or Saturday or both nights.  Similarly, the Saturday Families Day itself will be free of charge to attend (including lunch and refreshments).

One of the great advantages of this year’s was that we had sole use of the whole site. We have been able to get exclusive use of the whole site again for 2019 but whereas this year, it was pure luck that no other groups were booked in, the charity is understandably having to pay a premium to ensure this is the case for 2019. This has meant that we have had to make a modest increase in the price for people wanting to stop over from £25 to £27.50 per person per night which includes dinner, bed & breakfast – still excellent value we feel! Based on the overwhelmingly positive feedback from the families this year about the event – “great”, “fantastic”, “lovely” “excellent”, “perfect” – and the extra opportunities to interact and share stories and knowledge with other families, we hope even more people will want to stay over next year.

I’m pleased to say that we can now start taking registrations now for both the Families Day itself and for those wanting to stay over one or both nights. This year we have a dedicated email address for registrations and everything to do with the event – – so drop us a line and we’ll get a registration form to you pronto – we’re looking forward to hearing from you.

Meanwhile, many members and supporters are planning fundraising walks this weekend to coincide with Jacqueline Noonan’s 90th birthday on Sunday 28th October, for example Alison Good’s 26 Miles for Noonan Smiles and Super Owain and his sidekicks’ Super Hero Walk are just two examples. Both of them have fundraising pages (along with several other fundraisers) on our MyDonate fundraisers page – please support them if you can.