Running for Mark

posted in: Our Campaigns | 0

Matthew has set himself a personal challenge of running the London Marathon to honour his brother and to provide an on-going legacy for Mark through the Noonan Syndrome Association.

He needs your support.

I’m running the London Marathon in April 2020 for Noonan Syndrome and for my brother Mark Legg.

Mark was born to Ian and Lesley Legg in April 1986 and was soon diagnosed with Noonan Syndrome. At this time, this was a rare and very little understood diagnosis. Mark showed a fighting spirit due to his ill health whilst providing testing but necessary and important challenges to medical staff. 

He became a role model for young people with Noonan Syndrome as he went through school, college and then picked up voluntary employment. His outgoing, sociable and cheeky nature made him widely known and loved.

In the past few years, my brother’s health deteriorated and sadly in April 2019, Mark passed away. Shortly before his death, Mark took part in a “24 Hours in A&E” programme for Channel 4, telling his story and showing his strong desire to live independently.

I make no qualms about it – I am running the London Marathon 2020 for the Noonan Syndrome Association to honour my brother and to provide an on-going legacy for Mark through the charity. I want to ensure his passing offers some help and support to other families facing the same position we found ourselves in.

In 1986. little was known about the condition but, in part through the hard work of the charity, we know now a little more about a condition which affects 1 in every 2000 live births in the UK and is one of the most complex Genetic conditions around.

I want to do my utmost to honour a special friend, uncle, son and brother by supporting a charity which is dedicated to families like ours.

Please help me to help them by pledging your support through this page.

I thank you all in advance and I hope to see as many of you as possible there supporting me on the day.

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