We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

Recent News

  • Annual Families Day

    We are delighted to announce the date of our 2016  families for families day at the Hilton Birmingham Metropole Hotel at the Birmingham NEC. On Saturday 23rd April we will …Read More »
  • New NSA T-Shirts

    Fantastic, informative, friendly, superb are just some of the things people said on the day. And they came up with lots of ideas for next year already! See what our …Read More »
  • Coming Together

    As genetic research moves on and genetic testing becomes ever more precise, some families have discovered that they may be affected by related conditions in the RASopathies “family” rather than …Read More »
  • In Remembrance

    John Mulcahy John lived a very full life and touched many people during his 47 years. He had many interests particularly sport. As well as attending many sporting events, he …Read More »


£9,100 / £15,000

To fund our next research project we need £15,000 – we are getting there but we need your help!

The NSA is dedicated to supporting people and families affected by Noonan Syndrome.

To continue with our work we urgently need your support.