We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

Recent News

  • The Summer Newsletter is here and so will Jeans for Genes Day soon!

    Yes, Summer’s here at last. Go to our Newsletters page to view the latest newsletter from the Noonan Syndrome Association. And as a successful bidder for funds from Jeans for …Read More »

    The report of the Medical Advisory Group’s Question & Answer session at this year’s Families for Families Day is now available on our Publications page where you will also find …Read More »
  • Catherine Porter and her family and friends are organising a Family Fun Day in aid of Noonan Syndrome Association at the New Farnley Community Centre near Leeds on 21st August. …Read More »
  • Pokémon Go

    We thought it would be useful to pass on the website link to the NSPCC briefing on the new Pokémon Go app as it has had widespread popularity but it …Read More »
  • Annual Families Day

    We are delighted to announce the date of our 2016  families for families day at the Hilton Birmingham Metropole Hotel at the Birmingham NEC. On Saturday 23rd April we will …Read More »
  • New NSA T-Shirts

    Fantastic, informative, friendly, superb are just some of the things people said on the day. And they came up with lots of ideas for next year already! See what our …Read More »
  • Coming Together

    As genetic research moves on and genetic testing becomes ever more precise, some families have discovered that they may be affected by related conditions in the RASopathies “family” rather than …Read More »


£9,560 / £15,000

To fund our next research project we need £15,000 – we are getting there but we need your help!

The NSA is dedicated to supporting people and families affected by Noonan Syndrome.

To continue with our work we urgently need your support.