Noonan Syndrome Association – Supporting People with Noonan Syndrome

£13,000 / £20,000

To fund our next Families Weekend we still need to raise £13,000 – we are getting there but we need your help!

We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

Recent News

Noonan Families Day and Activities Weekend
October 24, 2018
It’s less than 6 months until the next Families Activities Weekend on 12th to 14th April 2019 with the Families Day itself on Saturday 13th April. Although the full programme …Read More »
Families Day Recordings
October 13, 2018
Sorry for the delay but you can now find the recordings of most of the sessions from the 2018 Families Day here We’re gradually transcribing the recordings and these will …Read More »
Report on the latest international meeting on Ras/MAPK Pathway Disorders
August 8, 2018
Each year a key international conference takes place where leading figures from the medical world meet to look at the latest developments in research and treatment on the disorders along …Read More »
The 30 Year Follow Up Study
August 8, 2018
And the latest in our recordings of sessions from the 2018 Families Day concerns the invaluable work which is being undertaken by Professor Patton and his son Dr Alistair Patton. …Read More »
Now Hear This! The Question & Answer Sessions from the Families Day
August 8, 2018
Yes, you can now listen to both sessions of questions from families and answers from our panel of medical experts as it happened – here’s part 1: Noonans 2018 – …Read More »
More Sessions from the 2018 Families Day to listen to!
August 6, 2018
The next recordings are of Dr Emma Burkitt Wright’s presentation on Pregnancy & Noonan Syndrome (starting with Ian Legg thanking Andrea and Brian for their presentations – have you listened …Read More »
Listen to Families Day 2018!
August 1, 2018
We are putting recordings of some of the sessions and presentations from the 2018 Families for Families Day here, and the first up are Two Family Stories – Andrea Reid-Kelly and …Read More »

The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK

To continue with our work we urgently need your support.

Donate now online, send a donation or leave a legacy in your will.

Join the 'reach out campaign' to support the NSA through a regular giving scheme.

Fundraise through events, sponsorships & challenges at work or with friends.

To fund our next Families Weekend we still need to raise £13,000 – we are getting there but we need your help!

Recent News

Noonan Families Day and Activities Weekend

Families Day Recordings

Report on the latest international meeting on Ras/MAPK Pathway Disorders

The 30 Year Follow Up Study

Now Hear This! The Question & Answer Sessions from the Families Day

More Sessions from the 2018 Families Day to listen to!

Listen to Families Day 2018!

The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK

To continue with our work we urgently need your support.