Thanks to the combined efforts of a 20-strong team of charity personnel and guest speakers, the NSA conference in Manchester proved to be a day that offered a truly holistic insight into Noonan Syndrome Spectrum Disorders (NSSD) to an audience of 66 people with personal experience in some way of a NSSD diagnosis.
We support individuals, families, and professionals through shared knowledge and experience. We create a safe, caring community to help reduce isolation in our members.
We improve awareness of the condition and its impact to improve clinical practice and understanding in health & social care, education and other professional settings.
We facilitate research with international and national networks to advance improvements in the understanding, care, and management of the condition.
