The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK
To continue with our work we urgently need your support.
Recent News
Career guidance for SEND
Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby …Read More »
Essex Bike Ride
Paul Rider led a team riding for Noonan Syndrome Association on Sunday 8th September in the Foulness Bike Ride in Essex. The first picture shows Paul on the right and …Read More »
7th September Fundraiser
Some great pictures of a lovely fundraiser on the 7th September organised by Mrs Swift, mother to one of our trustees 🙂 The cake sale at Chastleton House National Trust …Read More »
Recent Blogs
Living the dream working the rails
Working on the railways is the dream for many children growing up. For Will Parham, that was the case. He now lives his dream as a volunteer at Truro station. …Read More »
Running and fundraising – go hand in hand for Lucy
‘Lucy the runner’ – is something Lucy Scanlon never thought she’d be called, but having completed her first running event in 2015, she got bitten by the bug and hasn’t …Read More »
Leading a normal life with a Noonans child
Parenting a child with a heart condition is no easy feat – but up and down the country, there are parents steering their poorly children through medical appointments, therapy and …Read More »
