The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK
To continue with our work we urgently need your support.
Recent News
Update
Firstly we hope that you are staying safe during this extremely difficult time. I know a lot of you are staying in contact during this time via the various social …Read More »POSTPONEMENT OF FAMILIES DAY AND ACTIVITIES WEEKEND 2020
The Noonan Syndrome Families Day and Activities Weekend scheduled to take place from 3rd to 5th April has been postponed following the escalating issues arising from the spread of the …Read More »The Coronavirus Situation
We are very aware that the Coronavirus Covid19 outbreak can be particularly worrying for those of us with a family member with Noonan Syndrome and very much share in concerns …Read More »
Recent Blogs
The First Breath – a memoir of birth and medicine by Olivia Gordon
Many of you will be aware of this book written by NSA member Olivia Gordon from when it was published last year. The First Breath is both Olivia’s story and …Read More »Case Study – Lizzie Armour
“Failure to thrive” – a phrase no parent wants to see written in their baby’s health records, but this is what Lizzie sees when she looks back at her own. …Read More »Living with Noonan Syndrome
Andrea was four and a half when she had her first open heart surgery, having been diagnosed at birth with Pulmonary Valve Stenosis. But it wasn’t until she was 16 …Read More »
