Please help support the NSA in memory of Mark Legg

We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK

To continue with our work we urgently need your support.

Donate now online, send a donation or leave a legacy in your will.
Join the ‘reach out campaign’ to support the NSA through a regular giving scheme.
Come to our annual families day for support, to meet others in the same situation and to hear from the top medical experts in the field

Recent News

  • Support Jeanette for the Cambridge Half Marathon

    Support Jeanette for the Cambridge Half Marathon

    We wanted to give a shout out to Jeanette, one of our fabulous fundraisers. Here is her story, please support her if you can. On 8th March 2020 I will …Read More »
  • BSPED conference in Cardiff

    BSPED conference in Cardiff

    Two of our trustees, Andrea Reid – Kelly and Ian Legg are in Cardiff this week attending the BSPED conference . This is the British Society of Paediatric Endocrinology and …Read More »
  • Career guidance for SEND

    Career guidance for SEND

    Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby …Read More »

Recent Blogs

  • My Journey With Noonan Syndrome

    My Journey With Noonan Syndrome

    I became involved with Noonan syndrome almost by accident but now I have completed almost 30 years of research into the condition and helped to discover the main gene responsible …Read More »
  • Brian Carlton

    Brian Carlton

    Brian (at 7 and now)Adam (at birth and 4 weeks) Brian Carlton and his wife Norma didn’t know anything about Noonan Syndrome until their third child Joanne came along. When …Read More »
  • Sharon’s Story

    Sharon’s Story

    Growing up with a brother with Noonans Sharon Allsopp, our deputy chair was four years old when her brother Richard was born. He was the third to be born to …Read More »