£13,000 / £20,000

To fund our next Families Weekend we still need to raise £13,000 – we are getting there but we need your help!

We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

Recent News


The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK

To continue with our work we urgently need your support.