Noonan Syndrome Association – Supporting People with Noonan Syndrome

Please help support the NSA in memory of Mark Legg

We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

Channel 4 showing Mark’s programme again this Friday
January 13, 2021
The 24 hours in A&E progamme about one of our members, Mark Legg, will be shown again on More 4 this Friday 15 January at 10pm. It is sad but …Read More »
Generous Donation
January 11, 2021
At the NSA we very much rely on the generous support of others. We were delighted to receive £400 from the Marsh Christian Fund this week – a great start …Read More »
VINCI UK Foundation awards £15,000 to Noonan Syndrome Association to support the community of families, and especially children and young people, affected by Noonan Syndrome across the UK.
October 31, 2020
The national charity, based in Shropshire, has received £15,000 from the VINCI UK Foundation to address the bullying and sense of isolation which many with Noonan Syndrome can experience. The …Read More »

The First Breath – a memoir of birth and medicine by Olivia Gordon
May 30, 2020
Many of you will be aware of this book written by NSA member Olivia Gordon from when it was published last year. The First Breath is both Olivia’s story and …Read More »
Case Study – Lizzie Armour
May 11, 2020
“Failure to thrive” – a phrase no parent wants to see written in their baby’s health records, but this is what Lizzie sees when she looks back at her own. …Read More »
Living with Noonan Syndrome
February 1, 2020
Andrea was four and a half when she had her first open heart surgery, having been diagnosed at birth with Pulmonary Valve Stenosis. But it wasn’t until she was 16 …Read More »