We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK

To continue with our work we urgently need your support.

Donate now online, send a donation or leave a legacy in your will.
Join the ‘reach out campaign’ to support the NSA through a regular giving scheme.
Come to our annual families day for support, to meet others in the same situation and to hear from the top medical experts in the field

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