The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK
To continue with our work we urgently need your support.
Recent News
A message from the chair of trustees
The Noonan Syndrome Association, UK board held its usual start of year board meeting in Birmingham on Saturday. We reviewed the position of the charity and it was good to …Read More »
A successful quiz night for the NSA
Brains were active, laughs were infectious and the atmosphere was buzzing in a very successful quiz and raffle held on 25th January where an amazing £1280.70 was raised for our …Read More »
Support Jeanette for the Cambridge Half Marathon
We wanted to give a shout out to Jeanette, one of our fabulous fundraisers. Here is her story, please support her if you can. On 8th March 2020 I will …Read More »
Recent Blogs
Living with Noonan Syndrome
Andrea was four and a half when she had her first open heart surgery, having been diagnosed at birth with Pulmonary Valve Stenosis. But it wasn’t until she was 16 …Read More »
My Journey With Noonan Syndrome
I became involved with Noonan syndrome almost by accident but now I have completed almost 30 years of research into the condition and helped to discover the main gene responsible …Read More »
Brian Carlton
Brian (at 7 and now)Adam (at birth and 4 weeks) Brian Carlton and his wife Norma didn’t know anything about Noonan Syndrome until their third child Joanne came along. When …Read More »
