Noonan Syndrome Association – Supporting People with Noonan Syndrome

Please help support the NSA in memory of Mark Legg

We support families through a dedicated medical advisory group, events and publications.

We fund medical research to advance improvements in the understanding, care and management of the condition.

We improve awareness of the condition and its impact on the lives of those affected.

VINCI UK Foundation awards £15,000 to Noonan Syndrome Association to support the community of families, and especially children and young people, affected by Noonan Syndrome across the UK.
October 31, 2020
The national charity, based in Shropshire, has received £15,000 from the VINCI UK Foundation to address the bullying and sense of isolation which many with Noonan Syndrome can experience. The …Read More »
Join our small charity to make a BIG difference
October 8, 2020
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Do you have an Amazon account?
October 1, 2020
If you use Amazon at all, we now have a charity account with them. Amazon will donate 0.5% of the net purchase price (excluding VAT, returns and shipping fees) of …Read More »

The First Breath – a memoir of birth and medicine by Olivia Gordon
May 30, 2020
Many of you will be aware of this book written by NSA member Olivia Gordon from when it was published last year. The First Breath is both Olivia’s story and …Read More »
Case Study – Lizzie Armour
May 11, 2020
“Failure to thrive” – a phrase no parent wants to see written in their baby’s health records, but this is what Lizzie sees when she looks back at her own. …Read More »
Living with Noonan Syndrome
February 1, 2020
Andrea was four and a half when she had her first open heart surgery, having been diagnosed at birth with Pulmonary Valve Stenosis. But it wasn’t until she was 16 …Read More »