The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK
To continue with our work we urgently need your support.
Recent News
Channel 4 showing Mark’s programme again this Friday
The 24 hours in A&E progamme about one of our members, Mark Legg, will be shown again on More 4 this Friday 15 January at 10pm. It is sad but …Read More »Generous Donation
At the NSA we very much rely on the generous support of others. We were delighted to receive £400 from the Marsh Christian Fund this week – a great start …Read More »VINCI UK Foundation awards £15,000 to Noonan Syndrome Association to support the community of families, and especially children and young people, affected by Noonan Syndrome across the UK.
The national charity, based in Shropshire, has received £15,000 from the VINCI UK Foundation to address the bullying and sense of isolation which many with Noonan Syndrome can experience. The …Read More »
Recent Blogs
My journey with my daughter Rose
I am a mother to three children with my husband Anthony, and our second child, Rose (born in 2005) has Noonan Syndrome. Rose has two brothers. Diagnosis Rose had a …Read More »The First Breath – a memoir of birth and medicine by Olivia Gordon
Many of you will be aware of this book written by NSA member Olivia Gordon from when it was published last year. The First Breath is both Olivia’s story and …Read More »Case Study – Lizzie Armour
“Failure to thrive” – a phrase no parent wants to see written in their baby’s health records, but this is what Lizzie sees when she looks back at her own. …Read More »
