The NSA is dedicated to supporting people and families affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK
To continue with our work we urgently need your support.
Recent News
Support Jeanette for the Cambridge Half Marathon
We wanted to give a shout out to Jeanette, one of our fabulous fundraisers. Here is her story, please support her if you can. On 8th March 2020 I will …Read More »
BSPED conference in Cardiff
Two of our trustees, Andrea Reid – Kelly and Ian Legg are in Cardiff this week attending the BSPED conference . This is the British Society of Paediatric Endocrinology and …Read More »
Career guidance for SEND
Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby …Read More »
Recent Blogs
My Journey With Noonan Syndrome
I became involved with Noonan syndrome almost by accident but now I have completed almost 30 years of research into the condition and helped to discover the main gene responsible …Read More »
Brian Carlton
Brian (at 7 and now)Adam (at birth and 4 weeks) Brian Carlton and his wife Norma didn’t know anything about Noonan Syndrome until their third child Joanne came along. When …Read More »
Sharon’s Story
Growing up with a brother with Noonans Sharon Allsopp, our deputy chair was four years old when her brother Richard was born. He was the third to be born to …Read More »
