The NSA is here to support you and your loved ones.

We understand how worrying, uncertain and fearful the diagnosis of Noonan Syndrome can be for you or your loved ones.

Our website contains resources to assist in communicating with others and aid with understanding. If we can help you in anyway or you just need someone to talk to please get in touch.

Become A Member

Be a part of the Local, National and International Noonan Community!

Membership is open to:

  • Anyone who has Noonan Syndrome
  • Families affected by Noonan Syndrome
  • Medical Practitioners

Members have access to:

  • Local and national events
  • Local support groups
  • Factsheets and research papers

Membership to our organisation is free.

“Connecting with other NS families made us feel less alone”

(Member feedback from Families Day 2019)

The Noonan Syndrome Association seeks to:

Support those affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK and their carers
Support medical and social research into the condition
Improve awareness of the condition and its impact on those affected.

Members are families, carers and individuals affected by Noonan Syndrome and people with professional expertise in Noonan Syndrome.

Thanks to: