We understand how worrying, uncertain and fearful the diagnosis of Noonan Syndrome can be for you or your loved ones.
Our website contains resources to assist in communicating with others and aid with understanding. If we can help you in anyway or you just need someone to talk to please get in touch.
Be a part of the Local, National and International Noonan Community!
Membership is open to:
Members have access to:
Membership to our organisation is free.
The Noonan Syndrome Association seeks to:
Support those affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK and their carers
Support medical and social research into the condition
Improve awareness of the condition and its impact on those affected.
Members are families, carers and individuals affected by Noonan Syndrome and people with professional expertise in Noonan Syndrome.