Our major annual event – Families for Families Day and Activities Weekend – will take place over the weekend of 3rd to 5th April 2020 at the Whitemoor Lakes Centre near Lichfield in Staffordshire. This event provides families and individuals with up-to-the-minute information on research, treatment etc plus real opportunities to talk in a less formal way to the leading medical professionals in the field, as well as networking and making friends with other NSA members. We are working on the programme but we hope to include sessions on Growth Hormone Treatment, combatting stress, cardiac issues in Noonan Syndrome and Learning. We will give out more details in October but the Families Day itself will be free with lunch included and again we’ll be providing activities and entertainment for children and young people whilst offering the opportunity for individuals and families to make a weekend of it. Put the dates in your diary!

Here are some pictures from our 2019 Event: