We are a small charity packing a mighty punch! With a membership of over 650 individuals and families affected by Noonan Syndrome, and a further 100 Associate Members who have a professional interest in the condition, we operate remotely as a small team consisting of a part-time charity manager and a board of trustees.
Click on any member of the Team below for their full bio.
Became a trustee as her brother had NS. Took over as chair in 2022.
Joined as Charity Manager in March 2021 bringing decades of charity experience.
Consultant Clinical Geneticist, involved in establishing the original Noonan Syndrome family group in 1985
Brian and his 3 grown-up children and 2 grandchildren all have NS, all with different symptoms and severity
Former chair and co-founder of NSA, involved since 1985. Son Mark (1986-2019) had NS.