We are a small charity packing a mighty punch! With a membership of over 900 individuals and families affected by Noonan Syndrome, and a further 100 Associate Members who have a professional interest in the condition, we operate as a small team consisting of a part-time charity manager and a board of trustees.

We now have a small office, based in Lancashire (BB7 9AZ), so if you are local to that area and interested in volunteering, please get in touch with the charity manager at info@noonansyndrome.org.uk

Click on any member of the Team below for their full bio.