Membership is open to:

  • Anyone who has Noonan Syndrome
  • Families affected by Noonan Syndrome
  • Medical Practitioners

Members have access to:

  • Local and national events
  • Local support groups
  • Factsheets and research papers

Membership to our organisation is free.

The Noonan Syndrome Association seeks to:

  • Support those affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK and their carers.
  • Support medical and social research into the condition
  • Improve awareness of the condition and its impact on those affected.

The Noonan Syndrome Association belongs to its membership – families, carers and people affected by Noonan Syndrome and those with professional expertise in Noonan Syndrome.

Complete the form below to be a part of the Local, National and International Noonan Community.