Be a part of the Local, National and International Noonan Community!

Membership is open to:

  • Anyone who has Noonan Syndrome
  • Families affected by Noonan Syndrome
  • Medical Practitioners

Members have access to:

  • local and national events
  • local support groups
  • factsheets and research papers

Membership to our organisation is free.

The Noonan Syndrome Association seeks to:

  • support those affected by Noonan Syndrome and related conditions (on the Ras/MAPK pathway) in the UK and their carers
  • support medical and social research into the condition
  • improve awareness of the condition and its impact on those affected.

The Association belongs to its membership – families, carers and people affected by Noonan Syndrome and those with professional expertise in Noonan Syndrome.

To join click here