NewsResearch
The Noonan Syndrome Association is pleased to announce the opening of the Pam Belson Memorial Research Grant, offering funding of up to £10,000 for research focused on the cardiac manifestations of Noonan Syndrome (NS).
The grant has been established in memory of Pam Belson, who tragically passed away following a sudden cardiac arrest on 21 December 2025 after a period in hospital. Pam is described by her family as “one of a kind” and is deeply missed by all who knew and loved her.
Pam’s family has raised funds in her memory, choosing to support the Noonan Syndrome Association through research that may help improve understanding of the cardiac aspects of NS. This grant has been made possible through those fundraising efforts and is a lasting tribute to Pam and her family’s wish to make a positive difference for others affected by NS.
We are therefore inviting researchers to submit proposals for projects that will improve understanding of cardiac manifestations of Noonan Syndrome and have the potential to contribute to better knowledge, care or outcomes for people living with the condition.
Funding of up to £10,000 is available. Applications may request any amount up to this maximum and should provide a clear justification for the funding requested. Applicants are asked to set out the research question, objectives, methodology, relevance to Noonan Syndrome, expected benefits, project timeline and budget, alongside information about the research team and relevant approvals.
Key dates:
Grant opens: 10 October 2026
Application deadline: Close of play Friday 20 November 2026
Completed applications should be emailed to:
research@noonansyndrome.org.uk
Please ensure that all required supporting information is included with your application. The submission checklist includes the completed application form, budget, lead applicant CV, relevant team CVs and confirmation of support from the host institution.
The Noonan Syndrome Association is grateful to Pam’s family for choosing to honour her memory in this way and hopes that this fund will support research that makes a meaningful contribution to the understanding and management of cardiac manifestations of Noonan syndrome.
