Update
Firstly we hope that you are staying safe during this extremely difficult time. I know a lot of you are staying in contact during this time via the various social media outlets where you can share experiences and practical advice. … Continued
POSTPONEMENT OF FAMILIES DAY AND ACTIVITIES WEEKEND 2020
The Noonan Syndrome Families Day and Activities Weekend scheduled to take place from 3rd to 5th April has been postponed following the escalating issues arising from the spread of the coronavirus. Our primary concern is the health of our Noonan … Continued
The Coronavirus Situation
We are very aware that the Coronavirus Covid19 outbreak can be particularly worrying for those of us with a family member with Noonan Syndrome and very much share in concerns about the situation. Everyone’s case and circumstances are different of … Continued
Jeanettes Challenge
One of our members Jeanette has just finished this amazing challenge, in 2 hours, 1 min and 22 sec. Jeanette says “I found it tough-going in the cold wind at start with crowds, but then got too hot! Managed to … Continued
A message from the chair of trustees
The Noonan Syndrome Association, UK board held its usual start of year board meeting in Birmingham on Saturday. We reviewed the position of the charity and it was good to see that the finances we have will enable us to … Continued
A successful quiz night for the NSA
Brains were active, laughs were infectious and the atmosphere was buzzing in a very successful quiz and raffle held on 25th January where an amazing £1280.70 was raised for our charity. We want to say a big thank you to … Continued
Support Jeanette for the Cambridge Half Marathon
We wanted to give a shout out to Jeanette, one of our fabulous fundraisers. Here is her story, please support her if you can. On 8th March 2020 I will be running my first Cambridge Half Marathon in order to … Continued
BSPED conference in Cardiff
Two of our trustees, Andrea Reid – Kelly and Ian Legg are in Cardiff this week attending the BSPED conference . This is the British Society of Paediatric Endocrinology and Diabetes – Andrea and Ian are there to raise the … Continued
Career guidance for SEND
Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby Education and the Careers and Enterprise Company & Disability Rights … Continued
Noonan Families Day and Activities Weekend
It’s less than 6 months until the next Families Activities Weekend on 12th to 14th April 2019 with the Families Day itself on Saturday 13th April. Although the full programme for the Families Day won’t be published for a few … Continued