The 24 hours in A&E progamme about one of our members, Mark Legg, will be shown again on More 4 this Friday 15 January at 10pm. It is sad but also inspiring footage of a young man with NS who … Continued
At the NSA we very much rely on the generous support of others. We were delighted to receive £400 from the Marsh Christian Fund this week – a great start to the new year 🙂
The national charity, based in Shropshire, has received £15,000 from the VINCI UK Foundation to address the bullying and sense of isolation which many with Noonan Syndrome can experience. The Noonan Syndrome Association is the only organisation working for families … Continued
If you use Amazon at all, we now have a charity account with them. Amazon will donate 0.5% of the net purchase price (excluding VAT, returns and shipping fees) of eligible purchases to Noonan Syndrome Association. You can find details here at … Continued
A keen runner has mapped out a ‘London Marathon’ route to fulfill a pledge to raise funds for his brother who died from a rare genetic condition. Police officer Matt Legg will run the 26.2 miles from Southwater to Goring … Continued
Following quickly on from the charitable sector, the Government has now issued its own official exemption from face covering badge. This is available in both printable and mobile phone versions and you can find them here: https://www.gov.uk/government/publications/face-coverings-when-to-wear-one-and-how-to-make-your-own
As you’ll all be aware, the wearing of face masks is increasingly being promoted by all the UK Governments and Assemblies – for example, the wearing of face masks in shops will generally be mandatory in England from Friday 24th … Continued
If you missed it first time, there is another chance to see the “24 hours in A&E” programme about Mark Legg. It is being repeated on More 4 at 12.20 am in the early hours of Friday 24 July. We … Continued
