Running for Mark on October 4th

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A keen runner has mapped out a ‘London Marathon’ route to fulfill a pledge to raise funds for his brother who died from a rare genetic condition. Police officer Matt Legg will run the 26.2 miles from Southwater to Goring … Continued

Covid19 & Facemask Update

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Following quickly on from the charitable sector, the Government has now issued its own official exemption from face covering badge. This is available in both printable and mobile phone versions and you can find them here: https://www.gov.uk/government/publications/face-coverings-when-to-wear-one-and-how-to-make-your-own

COVID 19 & Face Masks

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As you’ll all be aware, the wearing of face masks is increasingly being promoted by all the UK Governments and Assemblies – for example, the wearing of face masks in shops will generally be mandatory in England from Friday 24th … Continued

Update

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Firstly we hope that you are staying safe during this extremely difficult time. I know a lot of you are staying in contact during this time via the various social media outlets where you can share experiences and practical advice. … Continued

The Coronavirus Situation

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We are very aware that the Coronavirus Covid19 outbreak can be particularly worrying for those of us with a family member with Noonan Syndrome and very much share in concerns about the situation. Everyone’s case and circumstances are different of … Continued

Jeanettes Challenge

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One of our members Jeanette has just finished this amazing challenge, in 2 hours, 1 min and 22 sec. Jeanette says “I found it tough-going in the cold wind at start with crowds, but then got too hot! Managed to … Continued

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