Update

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Firstly we hope that you are staying safe during this extremely difficult time. I know a lot of you are staying in contact during this time via the various social media outlets where you can share experiences and practical advice. … Continued

The Coronavirus Situation

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We are very aware that the Coronavirus Covid19 outbreak can be particularly worrying for those of us with a family member with Noonan Syndrome and very much share in concerns about the situation. Everyone’s case and circumstances are different of … Continued

Jeanettes Challenge

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One of our members Jeanette has just finished this amazing challenge, in 2 hours, 1 min and 22 sec. Jeanette says “I found it tough-going in the cold wind at start with crowds, but then got too hot! Managed to … Continued

BSPED conference in Cardiff

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Two of our trustees, Andrea Reid – Kelly and Ian Legg are in Cardiff this week attending the BSPED conference . This is the British Society of Paediatric Endocrinology and Diabetes – Andrea and Ian are there to raise the … Continued

Career guidance for SEND

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Every young person – whatever their circumstances – relies on world class career guidance to be able to make the right choices for their future. This publication from the Gatsby Education and the Careers and Enterprise Company & Disability Rights … Continued

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