A keen runner has mapped out a ‘London Marathon’ route to fulfill a pledge to raise funds for his brother who died from a rare genetic condition. Police officer Matt Legg will run the 26.2 miles from Southwater to Goring … Continued
Following quickly on from the charitable sector, the Government has now issued its own official exemption from face covering badge. This is available in both printable and mobile phone versions and you can find them here: https://www.gov.uk/government/publications/face-coverings-when-to-wear-one-and-how-to-make-your-own
As you’ll all be aware, the wearing of face masks is increasingly being promoted by all the UK Governments and Assemblies – for example, the wearing of face masks in shops will generally be mandatory in England from Friday 24th … Continued
If you missed it first time, there is another chance to see the “24 hours in A&E” programme about Mark Legg. It is being repeated on More 4 at 12.20 am in the early hours of Friday 24 July. We … Continued
The Noonan Syndrome Families Day and Activities Weekend scheduled to take place from 3rd to 5th April has been postponed following the escalating issues arising from the spread of the coronavirus. Our primary concern is the health of our Noonan … Continued
We are very aware that the Coronavirus Covid19 outbreak can be particularly worrying for those of us with a family member with Noonan Syndrome and very much share in concerns about the situation. Everyone’s case and circumstances are different of … Continued
One of our members Jeanette has just finished this amazing challenge, in 2 hours, 1 min and 22 sec. Jeanette says “I found it tough-going in the cold wind at start with crowds, but then got too hot! Managed to … Continued
The Noonan Syndrome Association, UK board held its usual start of year board meeting in Birmingham on Saturday. We reviewed the position of the charity and it was good to see that the finances we have will enable us to … Continued
