Are there any associated liver problems with Noonan Syndrome?

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I’ve had a couple of scans recently that show the stiffness of my liver is increasing. I just wondered if anybody had come across that before.

I don’t think we recognise progressive liver disease as a common association with Noonan Syndrome. If there’s no sign of any auto-immune issues then I think the liver team should treat you as they would anybody presenting to the liver clinic. They like to do lots of tests and that would seem to be the sensible approach in this case.

Question asked and answered at our family’s day 2018