My son has RAF1, and he now has a moderate leaky mitral valve which was trivial and changed within 6 months to moderate along with a new leaky aortic valve. Can they self-correct or do they deteriorate, needing surgery? My son is 10 years old.
Everybody is different, and in some cases, the amount of leakiness can progress to the extent that it causes symptoms and needs surgery; in other cases, the leakiness can stay stable for many years and not cause any problems. The key is to make sure that he remains under close follow up.
