I became a Trustee of the Noonan Syndrome Association in 2026, bringing both personal experience and professional skills to the role.
My son Valentine was diagnosed with Noonan syndrome when he was six months old. Our family’s journey through diagnosis and early support deeply shaped my understanding of the challenges and importance of community, information, and connection for families navigating rare conditions.
Professionally, I have a background in merchandising, with extensive experience in forecasting, budgeting, and financial management. I am now using these skills to support the charity’s financial oversight and sustainability, helping ensure resources are used effectively to benefit the families who rely on the association.
I joined the Board to give back to the community that supported us during one of the most uncertain times in our lives, and I am committed to helping other families feel informed and supported.
